RMG's Life In The Electric Chair: EDS, Like A Bad Neighbor
No, I haven't lost my faith and I haven't surrendered to hopelessness, but, yet, I have tried to view my present circumstances with an understanding that this too, someway; somehow will pass. Yes, I know it's a genetic disease for which there is no cure or treatment - although there are things that can be done to help manage it better. Nevertheless, I still believe in the miraculous.
This disease has moved in, against my objections and my will, like the psychotic dorm-mate from college you got stuck with or the neighbor who lives just to make your life miserable. But instead of borrowing your favorite sweater without asking or not returning your lawnmower, EDS - Ehlers Danlos Syndrome - borrows my hands, my feet, my back. Without warning or permission it attacks my limbs, my ability to walk and to, confidently, hold things in my hands.
And the pain; the fatigue? The pain is, many times, north of excruciating and rarely south of mild. The fatigue is debilitating in the strictest sense of the word. They have, over the years, stolen time from my children, moments from my relationships and precious periods from my wife. No, I am not bitter; I am not discouraged.
We are not friends, this disease and I, although it and my spirit occupy the same body. Yes, EDS resides here, but it will not rule here. Today, I soak in the rays of an eternal hope and swim in the waters of the promise of Him who said "I'll never leave you or forsake you." With that I am able to do more than survive, I can thrive.